This sourcebook has been created for parents who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells parents where and how to look for information covering virtually all topics related to kearns-sayre syndrome, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on kearns-sayre syndrome. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Kearns-Sayre Syndrome: Guidelines; Chapter 2. Seeking Guidance; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 3. Studies on Kearns-Sayre Syndrome; PART III. APPENDICES; Appendix A. Researching Your Child's Medications; Appendix B. Researching Nutrition; Appendix C. Finding Medical Libraries; Appendix D. Your Child's Rights and Insurance; ONLINE GLOSSARIES; KEARNS-SAYRE SYNDROME GLOSSARY; INDEX. Related topics include: Chronic Progressive External Ophthalmoplegia and Myopathy, Chronic Progressive External Ophthalmoplegia with Ragged Red Fibers, hereditary external ophthalmoplegia, Kearns-Sayre Disease, Mitochondrial Cytopathy, Kearn-Sayre Type, oculocraniosomatic neuromuscular disease, Oculocraniosomatic Syndrome (obsolete), Ophthalmoplegia Plus Syndrome, Ophthalmoplegia, Pigmentary Degeneration of the Retina and Cadiomyopathy, ophthalmoplegia-plus, ragged red fiber disease.

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