This sourcebook has been created for parents who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells parents where and how to look for information covering virtually all topics related to mccune-albright syndrome, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on mccune-albright syndrome. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on McCune-Albright Syndrome: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and McCune-Albright Syndrome; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on McCune-Albright Syndrome; Chapter 5. Books on McCune-Albright Syndrome; PART III. APPENDICES; Appendix A. Researching Your Child's Medications; Appendix B. Researching Nutrition; Appendix C. Finding Medical Libraries; Appendix D. Your Child's Rights and Insurance; ONLINE GLOSSARIES; MCCUNE-ALBRIGHT SYNDROME GLOSSARY; INDEX. Related topics include: Albright Syndrome, Osteitis Fibrosa Disseminata, Polyostotic Fibrous Dysplasia, Precocious Puberty with Polyostotic Fibrosis and Abnormal Pigmentation.

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