This sourcebook has been created for parents who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells parents where and how to look for information covering virtually all topics related to adrenoleukodystrophy, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on adrenoleukodystrophy. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Adrenoleukodystrophy: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Adrenoleukodystrophy; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Adrenoleukodystrophy; Chapter 5. Patents on Adrenoleukodystrophy; Chapter 6. Books on Adrenoleukodystrophy; Chapter 7. Physician Guidelines and Databases; Chapter 8. Dissertations on Adrenoleukodystrophy; PART III. APPENDICES; Appendix A. Researching Your Child's Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Child's Rights and Insurance; ONLINE GLOSSARIES; ADRENOLEUKODYSTROPHY GLOSSARY; INDEX. Related topics include: Addison Disease with Cerebral Sclerosis, Addison-Schilder Disease, Adrenomyeloneuropathy, Bronze Schilder's Disease, diffuse cerebral sclerosis with adrenocortical atrophy, Encephalitis Periaxialis Diffusa, Flatau-Schilder Disease, Melanodermic Leukodystrophy, Myelinoclastic Diffuse Sclerosis, Neonatal adrenoleukodyrstophy, Schilder Disease, Schilder Encephalitis, Sex-linked metachromatic leukodystrophy.

Скачать книгу бесплатно (pdf, 586 Kb)

---

Читать «The Official Parent's Sourcebook on Adrenoleukodystrophy: A Revised and Updated Directory for the Internet Age»